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Q J Med 2000; 93: 67-73
© 2000 Association of Physicians


Review

A practical guide to continuous population-based data collection (PACE): a process facilitating uniformity of care and research into practice

S.J. Proctor and P.R.A. Taylor

From the Department of Haematology, Royal Victoria Infirmary, Newcastle upon Tyne, UK

Address correspondence to Professor S.J. Proctor, Department of Haematology, Royal Victoria Infirmary, Newcastle upon Tyne NE1 4LP. e-mail:s.j.proctor@ncl.ac.uk


    Introduction
 
In an editorial on clinical databases in the British Medical Journal, Professor Black indicated that in this era of assessment and accountability in medicine, there is a tendency to cling to traditional research methodology, in spite of its well-recognized limitations.1 He points out that classical studies are expensive, of limited duration and in limited clinical arenas. A major problem in trials is that study populations are unlike the average population seen by doctors in their practice, and the lack of introduction of positive research findings into practice continues to be of major concern. In his article, Black discusses the potential value of new processes of intervention in health care, using as the starting point high-quality clinical databases which potentially allow everyday practise to come closer to research.

Over the past 20 years progress has been made in this area in the UK, following the pioneering work of the surgeons . . . [Full Text of this Article]


    PACE: the process and how to do it
 

    Communication: the key element
 

    Can it work for other disciplines?
 

    Developing the system
 

    Amalgamations and collaborations
 

    Practicalities of financing and data collection
 

    Building the process into practice
 

    PACE in action
 
A total care package for Hodgkin's disease—PACE based

    Individual advice on patient care using PACE data
 
Request letter from consultant colleague
Reply

    Conclusion
 

    Acknowledgments
 

    References
 

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